Monday, August 7, 2017

They're BAAAAAACK!!!

My next topic was going to be:  How do you know when you have killed all of the parasites?
I don't know.
I know I was feeling so much better there for awhile, and then the pain in my hips and legs became so bad, I knew they were back.
I don't sleep at night, I cry all the time.  This is so miserable, why can't someone help me?
As I said before, the hardest part is finding someone to guide you and support you.
I discovered that  The Tahoma Clinic has a fellow who deals with parasites.  It's just down the street from me.  I have made an appointment to see him but that won't be until August 29th.
I have an appointment with my regular doc tomorrow, which will be wasted time.  I thought maybe, just maybe, I should see if I actually had something else going on in my hip.  Then this morning I googled Joint pain and parasites.  And this article appeared!!!
Validation, my friends.

Wednesday, July 19, 2017


Oy vey.
I was just reading that if you are elderly or have autoimmune issues, you probably shouldn't do a cleanse since it can make conditions worse.  Since I was so sick with them, I feel I made the best decision in doing a cleanse.  Since killing the worms, I am very toxic and I need to get those toxins out of my body.  Methods I have used:
Lymphatic massage,
reflexology massage
Infrared light wraps.
Daily epsom salt baths

Now it is time that I build up my system and repair the damage that has been done.
Last week, after having a reflexology massage, I was so sick and in so much pain.  It's hard work to expel the toxins.
Over the course of the last 6 months, I have had many, many massages.  I am finding that the massage therapists, for the most part, share my belief that the worms live in the soft tissue and only go to the stomach or intestines to feed.  I can tell you, or point out, every part of my body where I believe the worms were in residence.  Yes, I could feel them moving around.  Under my ribs, my left foot, my right thigh and hip. 
It could be a major cause of arthritis.
That brings up the point.  What kind of worm do I have?  I don't know.  I took in pictures, actual worms and many, many fecal samples for evaluation, but the lab always came back negative for human parasite.  From my research, this is very common.  And, the doctors will not medicate you unless they know exactly what worm you have.
So back to the detoxing.  I have developed skin issues, a result I assume of the toxins trying to leave the body through the pores.  Now I itch.  Rashes are common.  I don't see a rash but I sure have the itches.
Oh, and hair loss.  I put my order in for Keranique.  Hope to see results.
You would think that after getting rid of them, the symptoms would go away, but they linger on.  I want to emphasize this, since it has been a long haul for me.  I was hoping for a "cure" in 15 days.

Back to my nutritionist.  I came to Suzie with a suitcase of problems.  I was in the middle of my first cleanse, and I had just been diagnosed with Lymphocytic Colitis.  Suzie and I worked on nutrition, digestion, and the importance of healthy fats.
She then started me on the SPECIFIC CARBOHYDRATE DIET.  I'm not going to explain that since you can research it.  This diet, in addition to taking daily CBD drops (cannabis) has enabled me to reverse my condition.  I will still carry Kaopectate in my car just in case, but have not had a need for about 3 months.
This is very scattered today.  I'm not in a great writing mood.  But here is the thing.  I see so many people at the grocery stores in their motorized carts.  The are mostly obese.  And I think to myself, Wow, do they realize they can cure themselves with the proper diet?  They must be in so much pain.  I know, because I have the pain, too.  I am doing my best to conquer this with diet.  That does not mean 1200 calories a day.  It means avoiding the foods I am sensitive to, avoiding most carbohydrates, using healthy fats and buying organic whenever I can.  Thank goodness for Costco.
As I said, this has been pretty scattered.  I may or may not have a part III.  Now or later.  Sometimes I get really tired of talking about and dealing with this.  If I think of anything else constructive, I will write again.
Oh.  My tongue.  Well, that is where the worms came out, right?  And when I do a cleanse, my tongue turns brown and is very swollen.  So my doctor thought maybe I had cancer of the tongue, and I had a biopsy done.  That was not explained to me at the time.  The Doc who did the biopsy felt we might be able to determine the type of worm.  No one said cancer until after the fact.  Of course it wasn't.  My tongue hurt so bad for two weeks.  Can you imagine?
So, the last advice I got from my Western Doctor was to get mental health counseling, because she, like so many, think I am nuts and it is all in my head.
But I have pictures!!!!

Tuesday, July 18, 2017


Remember the movie TREMORS with Kevin Bacon?  Those giant worms wreaked havoc on the countryside.  Worms in humans can also be devastating.  My friend thinks that I should share my experience so that others can learn from it.  Since my biggest challenge has been in getting good advice, this is a good idea.  The only help and support I have gotten is from the internet.  Thank goodness for GOOGLE.  This is a long story, so I will be writing it in parts.

Parasites in Humans

5 years ago I started getting sick.  Weird things happening that sent me to the ER on several occasions.  Severe pain under and around my ribs.  Difficulty breathing.
Total lack of energy.
No help from the doctors.
Meanwhile I developed high blood pressure, High cholesterol and low thyroid.  Seems like every time I turned around I was getting another medication.
And the anxiety and depression joined the crowd.  It's natural when you feel so terrible and don't know what is wrong.
In 2014, after another trip to the ER, I was diagnosed with Hashimoto's Thyroiditis, an autoimmune disease which attacks your thyroid, preventing it from doing it's job.
At my Doctor's advice, I started working with a Naturopathic doctor who specializes in thyroid disease.  I had her stumped.  We could not come up with a treatment that helped me.
All this time, I was fighting edema in my legs and rib area.
In late 2015 I suddenly gained 40 pounds in the course of 6 weeks.  I googled "sudden wight gain".  One of the topics was "Are parasites making you fat?"  Obviously, I did not give this article enough attention.  I kept going to my doctor, a new one now since I was on Medicare and was able to get decent insurance through the ACA.  I'm really trying to keep this short, believe me.  I was tested for every disease or condition you can imagine.  My legs looked like tree trunks and I was suffering from a lot of pain in my hips and legs.  Finally, the internist I had been referred to told me to cut out the salt.
In June of 2016 I went to another Naturopathic doctor.  She did a ton of blood tests and the results showed numerous food sensitivities, candida, Immunity levels in the basement, Vit D and 
B12 deficiencies, and an inability to absorb nutrients.  She put me on a number of supplements and a diet avoiding the foods I was sensitive to.  I will not give you the entire list.  The big ones are dairy, eggs, beef, lamb and beans.
Three months later I developed diarrhea and had it for 6 weeks.  I finally got a referral to a Gastroenterologist.  I was due for a colonoscopy, so we decided to start there.  He did a biopsy and discovered I have lymphocytic colitis.  The drugs to treat this cost over $1000 a month, and they are steroids, so I opted out and decided to work with diet.
At this point, I decided to start working with a Licensed Nutritional Therapist, Suzie Bauer of The Tasty Remedy.
Also at this time I was drinking bone broth.  To treat the candida, I found a great recipe for healing broth that was very spicy.  A day after taking it for the first time, I found white worms coming out of my tongue.  OMG!!!!  This was terrible.  I picked up a parasite cleanse from my local vitamin shoppe and started a cleanse.  One night, I had worms come out of my neck, my chest and my feet.  The cleanse creates an environment that the worms do not like, and they were trying to get the hell out of there.  So begins the frustrating journey of trying to clean my body of these invaders. Everyone asks me where I could have gotten the worms from.  Well, 50% of Americans have them!  Most of the time, you do not show any symptoms.  But, as the worms multiply and the load grows, the symptoms appear.  I was also an alpaca breeder, which put me in contact with alpaca poop on a daily basis.  And,there was that trip to Peru.  I could just as well have gotten them from a grocery cart or door handle.
Here were my symptoms:
gas and bloating
pain in joints, muscles and bones
changes in my vision
brain fog
balance problems
weight gain. 
Inability to lose weight
Okay, so these could be symptoms of so many things, but remember, I had been tested.  

I am going to end this for today.  I'll be back tomorrow or the next day for Part II.

Friday, December 18, 2015


It’s a rare day when a woman wants to talk about her weight, unless she is bragging about her weight loss.  Well, I am here  to tell you about all of the weight I have gained over the years, how miserable I am, and the probable cause.

I started gaining weight when I was 40, averaging about 10 pounda a year.  By the time I weighed 268 pounds, I decided to get Lap Band Surgery.  It was wonderful at first.  I lost a total of 50 pounds, which isn’t very much for a person having bariatric surgery.  That loss caused me to Lose my gall bladder, having emergency surgery in 2007.  Then I started gaining weight again.
Keep in mind, with a lap band, you can usually only eat a cup of food at a sitting.  So why was I gaining weight.  Of course, the death of my husband caused a lot of stress, but really?
I went to my doctor and told her I had gained 10 pounds in a month, and that it hurt.  She ran some blood tests and said I had a slightly low thyroid.  Getting thyroid medication did not help me, and the pain persisted. In the next two years I made three trips to the ER with severe pain and difficulty breathing.

And the beat goes on.  Still no answer.  My legs were swollen like tree trunks, and my abdomen was so swollen, it was difficult to bend over.  The doctor I was seeing here in Tukwila told me to go home and drink herbal tea and calm down.

Last year I qualified for Medicare and joined Group Health.  The doctor I was set up with was okay, but pretty much the same old thing.  Then she retired and I was placed with a Physician’s Assistant.  I went to see her about getting off my blood pressure medication since it was making me cough.  She looked at my records and said “You take Mirapex?  It’s notorious for causing edema.”  A year and a half ago I had gone to a neurologist for that reason, since the medication is for restless legs.  I have been taking it since I was 40.  The neurologist I saw who was not with Group Health, said there was no connection.

So.  Here I am now, I weigh more than I did when I had my lap band and I am miserable.  It could take quite some time for the edema to subside, but I am hopeful.  I want change over night.  I’m transitioning to a new medication and that has made the condition worse.

I need your good vibes and prayers to give me the strength and optimism to get through this.  It has been a long haul.

Saturday, October 31, 2015

The Tukwila Trailers

I am so lucky to have the Tukwila Community Center just down the street from us.
They have some amazing activities there, but I will only concentrate on the Tukwila Trailers for now.
This is a group for senior women.  We meet every Monday, regardless of the weather, and head out for a vigorous walk or hike.  I am so lucky.  Ever since I joined them, we've only had two days of inclement weather.  You just dress for it, and carry on.

On the way to Thompson Falls
There are usually 14 of us, a full van load.  Sometimes we have more and have to take a second van.  At 8:45 we load up and ride to the location chosen for that day.  We have gone as far as Cle Elum to the East, Olympia to the south, Bellingham to the north, and Kingston to the west.

Denny Creek
We hike for 2 hours.  I am the baby of the group at 65 years.  Our oldest member is 87.  These women inspire me.  I'm pretty bummed out right now since I'm having a lot of hip pain and can't join in until I do some physical therapy and feel better.  I have moderate arthritis and bone spurs in my right hip.  How the heck do we get bone spurs?  Guess I need to Google that.

This picture is at the Tacoma Waterfront.  I thought it was of the bicycle mounted way up on that piling, but I guess I picked the wrong one.  Scenery is the same, though.  I love walking along the waterfront, with the smell of the salt water and the sight of seals and dolphins.
If this weekend is any indication of what our weather is going to be like this year, we will have many wet hikes.  I do have rain gear, so I will be fine.
After the hike, we go to a nice restaurant for lunch.  It's a full day with a wonderful group of women.

Thursday, October 29, 2015

Stuk in the Tuk

I had thought about starting a new blog, since my life has changed so drastically in recent years, but it was too much work.  So, I will keep Fiberfabrications with a sub title of Stuk in the Tuk.  Stuck in the Tuk is a phrase young people use to describe life in Tukwila.  And to be honest, that was how I initially felt when I moved in with Terry.  Tukwila?  Really?  But as time has gone by, and I have made friends and gotten involved with volunteer work, I realize this is my calling.  I was meant to be here.  At least for now.  Tukwila is a diverse and multi cultural community, with over 35 languages spoken in the grade schools alone.  What a sight to drive by the Community Center and see a soccer team of young girls all dressed in their black burkas.

Last month, Terry went on a tuna fishing trip out of Westport, and came home with 275 pounds!  Needless to say, we have been very busy since then, freezing and canning.  I am attempting to get 40 jars a day done, but we had a week of sidetrack when both our furnace and water heater broke.  The hot water is back, but we are still waiting for our new furnace, which should arrive tomorrow.  Fortunately, this has been a very mild year, and we are doing fine without heat for now.

We bought a boat last spring and have been so happy with that decision.  Besides fishing and crabbing and filling up the freezer with salmon and crab, we enjoy picnics on the boat while cruising around Mercer Island, admiring the multi million dollar homes.  The other 1%.  But, as Terry likes to say, they are all at work, and we are here, enjoying the beautiful day.

Here is my grandson, Cadel.  We were giving him a safety lesson before he gets to go out in the boat with us.  Our schedules just didn't jive this year, but he is ready to help Granny drive the boat next year.

Tuesday, March 17, 2015


It's been difficult to have a positive attitude lately.  We have been having a hard time getting my thyroid kick started.  In November and December, things were going well, and then I had a setback.  The meds weren't working, and I reacted adversely to any new ones we tried.  I had gone down two sizes, but gradually took it all back in.  My worst problem with this disease is the swelling from inflamation.  The edema is so severe, it is painful.  I know when I wake up each morning how I am going to do by how badly my ribs hurt.  My toes feel like I could poke them with a pin and they would squirt water.  I wish it were that easy.
I think I sabotaged myself.  I gave up on my diet, truly believing that what I ate did not affect my symptoms.  I continued to be gluten and dairy free, for the most part.  I love tomatoes, and I wanted to not be affected by them.  Dumb, but I finally have to admit that the nightshade vegetables are a big issue for me.
So, I am back on the Paleo Leap again.  I am also drinking 10 ounces of coconut water a day to help with the swelling.  I was whining the other day about how yucky it had gotten to be, when my husband started singing "Put the lime in the coconut and drink it all up".  Well, darn, if it doesn't make it more palatable.  I had been adding lemon, but lime is much better.  In addition to the coconut water, I am taking 400mg of Potassium at night.

I had a family event to go to on Saturday, and I could not fit into any of my clothes.  I went in to Nordstroms, where I don't usually shop, but I needed help.  I started crying when I told the clerk what I needed.  She was amazing, and set me up with a beautiful orange skirt, an aqua tank top, and a multi colored floral cardigan.
Three days later, I am down two sizes again.
Yesterday I went on my Monday hike with the Tukwila Trailers, a group of senior women who go out hiking for two hours every Monday, rain, snow, or shine.  I love this group.  I was dismayed to discover I had very little energy, and found myself bringing up the rear.  Fatigue is my second worst symptom.
After we hike, we all go out to lunch.  This is also very difficult, since it is hard to find something on the menu I can eat.  I'm finding a bacon burger without bun, tomato or cheese will be good.  Or, a salad is a good option.  Yesterday the fist bite of my salad told me it was from a bag, and often, those bagged salads have sulfites in them.  I swelled up on the way home in the van.